By National Research Council, Policy and Global Affairs, Technology, and Law Panel Science
Within the years because the Shelby modification, scientists, undefined, and coverage makers have struggled over how the public’s new correct of entry may be utilized to medical info. there's free contract that study facts might be available, yet large war of words over the “depth” to which the general public has this type of correct. The nationwide Academies’ technology, expertise, and legislation software held a workshop to discover the mounting tensions within the federal regulatory method among the necessity to offer entry to investigate facts and the necessity to safeguard the integrity of the learn procedure. The workshop supplied an image of the controversy bobbing up from passage of the Shelby modification and the ensuing OMB revisions of round A-110. This record is a precis of the workshop.
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This quantity is the end result of a cooperative medical workshop among researchers from Israel and North Carolina, entitled examine Frontiers in Autism: Genetics, habit and Intervention, held in Jerusalem, June 28-30, 1999. in this workshop, a gaggle of pros got here jointly to increase their figuring out of the occasional hole that looks among examine ends up in the examine of autism and medical functions in its remedy.
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Extra info for Access to Research Data in the 21st Century (The compass series)
It also requires the participation of the original investigators. However, it may have a role in testing major studies that bear on important policy or health questions. HEI also has another alternative approach to data sharing that flows from its National Morbidity and Mortality Air Pollution Study (NMMAPS). The goal of the new program, called “The Internet Health and Air Pollu22 ALTERNATIVE APPROACHES TO DATA ACCESS 23 tion Surveillance System,” is to provide public access to data and statistical software and methods that are used in the NMMAPS.
Reichman Bunyan S. C. Mr. Craig M. C. Mr. Lawrence J. S. Department of Health and Human Services Rockville, Md. Mr. William B. S. C. Professor Edward P. Richards III Professor of Law Kansas City School of Law University of Missouri Kansas City, Mo. Dr. Frances E. C. Professor Channing R. Robertson Ruth G. and William K. Bowes Professor Department of Engineering Stanford University Stanford, Calif. Mr. Brendan R. Sheehan Corporate Counsel Pfizer, Inc. Y. Mr. Theodore Rockwell Founding Officer and Director Radiation, Science & Health, Inc.
Brendan R. Sheehan Corporate Counsel Pfizer, Inc. Y. Mr. Theodore Rockwell Founding Officer and Director Radiation, Science & Health, Inc. Chevy Chase, Md. Ms. Sally A. Rood Washington Representative Federal Laboratory Consortium Arlington, Va. Mr. John F. S. C. Ms. Stephanie Shipp Director Economic Assessment Office Advanced Technology Program National Institute of Standards and Technology Gaithersburg, Md.
Access to Research Data in the 21st Century (The compass series) by National Research Council, Policy and Global Affairs, Technology, and Law Panel Science